“I have SMA, SMA doesn’t have me”: a qualitative snapshot into the challenges, successes, and quality of life of adolescents and young adults with SMA

BACKGROUND: With the approval of three treatments for spinal muscular atrophy (SMA) and several promising therapies on the horizon, the SMA adolescent and young adult populations are expected to evolve in the coming years. It is imperative to understand this cohort as it exists today to provide opti...

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Detalles Bibliográficos
Autores principales: Mazzella, Allison, Curry, Mary, Belter, Lisa, Cruz, Rosángel, Jarecki, Jill
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7898731/
https://www.ncbi.nlm.nih.gov/pubmed/33618755
http://dx.doi.org/10.1186/s13023-021-01701-y

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7898731/
https://www.ncbi.nlm.nih.gov/pubmed/33618755
http://dx.doi.org/10.1186/s13023-021-01701-y

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