The Cure SMA Membership Surveys: Highlights of Key Demographic and Clinical Characteristics of Individuals with Spinal Muscular Atrophy

BACKGROUND: Cure SMA maintains the largest patient-reported database for people affected with spinal muscular atrophy (SMA). In 2017, Cure SMA initiated annual surveys with their membership to collect demographic and disease characteristics, healthcare, and burden of disease information from patient...

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Detalles Bibliográficos
Autores principales: Belter, Lisa, Jarecki, Jill, Reyna, Sandra P., Cruz, Rosangel, Jones, Cynthia C., Schroth, Mary, O’Toole, Colleen McCarthy, O’Brien, Shannon, Hall, Susan A., Johnson, Nicole B., Paradis, Angela D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: IOS Press 2021
Materias:
Research Report
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7902958/
https://www.ncbi.nlm.nih.gov/pubmed/33104036
http://dx.doi.org/10.3233/JND-200563

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7902958/
https://www.ncbi.nlm.nih.gov/pubmed/33104036
http://dx.doi.org/10.3233/JND-200563

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