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Implementation and evaluation of an e-health innovation for personalized care for patients with amyotrophic lateral sclerosis (ALS): protocol for a participatory action research study

BACKGROUND: In the absence of a cure for amyotrophic lateral sclerosis (ALS), a progressive neurodegenerative disease, treatment consists of symptomatic management by a multidisciplinary healthcare team and is mainly aimed at optimizing patients’ quality of life. Because the course of the disease is...

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Detalles Bibliográficos
Autores principales: Dontje, M. L., Kruitwagen - van Reenen, E., Visser-Meily, J. M. A., Beelen, A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7905760/
https://www.ncbi.nlm.nih.gov/pubmed/33632340
http://dx.doi.org/10.1186/s43058-021-00130-z