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Things left unsaid: important topics that are not discussed between patients with systemic sclerosis, their carers and their healthcare professionals—a discourse analysis

INTRODUCTION: Systemic sclerosis (SSc) is a rare condition that can be complicated by interstitial lung fibrosis (SSc-ILD)—a major cause of mortality. This study explored information and communication needs of patients with SSc-ILD and their carers to understand what they are and whether they are me...

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Detalles Bibliográficos
Autores principales: Denton, Christopher P., Laird, Bee, Moros, Lizette, Luna Flores, Jose Luis
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7943486/
https://www.ncbi.nlm.nih.gov/pubmed/32915347
http://dx.doi.org/10.1007/s10067-020-05371-2