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Things left unsaid: important topics that are not discussed between patients with systemic sclerosis, their carers and their healthcare professionals—a discourse analysis
INTRODUCTION: Systemic sclerosis (SSc) is a rare condition that can be complicated by interstitial lung fibrosis (SSc-ILD)—a major cause of mortality. This study explored information and communication needs of patients with SSc-ILD and their carers to understand what they are and whether they are me...
Autores principales: | Denton, Christopher P., Laird, Bee, Moros, Lizette, Luna Flores, Jose Luis |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7943486/ https://www.ncbi.nlm.nih.gov/pubmed/32915347 http://dx.doi.org/10.1007/s10067-020-05371-2 |
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