Development and psychometric validation of the family-centered multidimensional outcome measure for pediatric palliative care targeted to children with severe neurological impairmentis—A multicenter prospective study

BACKGROUND: Comprehensive outcome measurement in pediatric palliative care focusing on the entire unit of care, that is, the affected child and its family, is crucial to depict treatment effects. Despite its increasing relevance, no appropriate multidimensional outcome measures exist for the largest...

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Detalles Bibliográficos
Autores principales: Pelke, Sophie, Wager, Julia, Claus, Benedikt B., Zernikow, Boris, Reuther, Mandira
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2020
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7975858/
https://www.ncbi.nlm.nih.gov/pubmed/33339481
http://dx.doi.org/10.1177/0269216320975626

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7975858/
https://www.ncbi.nlm.nih.gov/pubmed/33339481
http://dx.doi.org/10.1177/0269216320975626

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