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Attitudes of Dilated Cardiomyopathy Patients and Investigators Toward Genomic Study Enrollment, Consent Process, and Return of Genetic Results

Precision medicine genetics study design requires large, diverse cohorts and thoughtful use of electronic technologies. Involving patients in research design may increase enrollment and engagement, thereby enabling a means to relevant patient outcomes in clinical practice. Few data, however, illustr...

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Detalles Bibliográficos
Autores principales: Blazek, Alisa D., Kinnamon, Daniel D., Jordan, Elizabeth, Ni, Hanyu, Hershberger, Ray E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7993282/
https://www.ncbi.nlm.nih.gov/pubmed/33108689
http://dx.doi.org/10.1111/cts.12909