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The Role of Parent/Caregiver with Children Affected by Rare Diseases: Navigating between Love and Fear
In this paper, we propose a vision of the role of parent/caregiver with children affected by a rare disease. This vision is rooted in data obtained from our own research; however, our analysis and interpretation of this data have been subsequently checked against existing theoretical models. The res...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
MDPI
2021
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8038217/ https://www.ncbi.nlm.nih.gov/pubmed/33918362 http://dx.doi.org/10.3390/ijerph18073724 |