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Assessment and management of disease burden and quality of life in patients with hereditary angioedema: a consensus report

BACKGROUND: Hereditary angioedema (HAE) is a rare disease characterized by unpredictable, potentially life-threatening attacks, resulting in significant physical and emotional burdens for patients and families. To optimize care for patients with HAE, an individualized management plan should be consi...

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Detalles Bibliográficos
Autores principales: Bork, Konrad, Anderson, John T., Caballero, Teresa, Craig, Timothy, Johnston, Douglas T., Li, H. Henry, Longhurst, Hilary J., Radojicic, Cristine, Riedl, Marc A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8056543/
https://www.ncbi.nlm.nih.gov/pubmed/33875020
http://dx.doi.org/10.1186/s13223-021-00537-2