Enhancing Value and Uptake for Whole-Population Cohorts of Children and Parents: Methods to Integrate Registries into the Generation Victoria Cohort

Health registries are critical to understanding, benchmarking and improving quality of care for specific diseases and conditions, but face hurdles including funding, bias towards clinical rather than population samples, lack of pre-morbid and outcomes data, and absent cross-registry harmonisation an...

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Detalles Bibliográficos
Autores principales: Sung, Valerie, Williams, Katrina, Perlow, Ella, Hu, Yanhong J., Ahern, Susannah, Said, Joanne M., Karanatsios, Bill, Hopper, John L., McNeil, John J., Donnan, Leo, Goldfeld, Sharon, Wake, Melissa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8067795/
https://www.ncbi.nlm.nih.gov/pubmed/33917154
http://dx.doi.org/10.3390/children8040285

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8067795/
https://www.ncbi.nlm.nih.gov/pubmed/33917154
http://dx.doi.org/10.3390/children8040285

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