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Challenges in Chronic Genetic Disorders: Lessons From the COVID-19 Pandemic
To examine the impact of the COVID-19 pandemic, we interviewed 26 patients with lysosomal storage disorders receiving enzyme replacement therapy. 20 (77 %) had significant interruption in their treatment, with an average of 8 (range 2–28) missed doses. Alternate methods of delivering uninterrupted c...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer India
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8079848/ https://www.ncbi.nlm.nih.gov/pubmed/33883315 http://dx.doi.org/10.1007/s13312-021-2202-x |