Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Platform Development Study

BACKGROUND: Rare disease communities are spread around the globe and segmented by their condition. Little research has been performed on the majority of rare diseases. Most patients who are affected by a rare disease have no research on their condition because of a lack of knowledge due to absence o...

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Detalles Bibliográficos
Autores principales: Radu, Roxana, Hernández-Ortega, Sara, Borrega, Oriol, Palmeri, Avril, Athanasiou, Dimitrios, Brooke, Nicholas, Chapí, Inma, Le Corvec, Anaïs, Guglieri, Michela, Perera-Lluna, Alexandre, Garrido-Aguirre, Jon, Ryll, Bettina, Nafria Escalera, Begonya
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2021
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8088870/
https://www.ncbi.nlm.nih.gov/pubmed/33779572
http://dx.doi.org/10.2196/22695

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8088870/
https://www.ncbi.nlm.nih.gov/pubmed/33779572
http://dx.doi.org/10.2196/22695

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