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Shaping national plans and strategies for rare diseases in Europe: past, present, and future
Addressing the many challenges posed by rare diseases to patients, families, and society at large demands a specific national (as well as transnational) focus. Historically, the practice of elaborating and adopting national plans and strategies for rare diseases, following a request from the Europea...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Berlin Heidelberg
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8097119/ https://www.ncbi.nlm.nih.gov/pubmed/33950416 http://dx.doi.org/10.1007/s12687-021-00525-4 |