Shaping national plans and strategies for rare diseases in Europe: past, present, and future

Addressing the many challenges posed by rare diseases to patients, families, and society at large demands a specific national (as well as transnational) focus. Historically, the practice of elaborating and adopting national plans and strategies for rare diseases, following a request from the Europea...

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Detalles Bibliográficos
Autores principales: Hedley, Victoria, Bottarelli, Valentina, Weinman, Ariane, Taruscio, Domenica
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2021
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8097119/
https://www.ncbi.nlm.nih.gov/pubmed/33950416
http://dx.doi.org/10.1007/s12687-021-00525-4

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8097119/
https://www.ncbi.nlm.nih.gov/pubmed/33950416
http://dx.doi.org/10.1007/s12687-021-00525-4

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