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A qualitative investigation into the impact of hemophagocytic lymphohistiocytosis on children and their caregivers

BACKGROUND: Primary hemophagocytic lymphohistiocytosis (pHLH) is a rare and life-threatening disorder, which usually occurs during infancy or early childhood and is characterized by abnormal activation of the immune system. However, the burden of pHLH on children and their families has not been prev...

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Detalles Bibliográficos
Autores principales: Nixon, Annabel, Roddick, Elina, Moore, Karen, Wild, Diane
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8101208/
https://www.ncbi.nlm.nih.gov/pubmed/33957935
http://dx.doi.org/10.1186/s13023-021-01832-2