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A qualitative investigation into the impact of hemophagocytic lymphohistiocytosis on children and their caregivers
BACKGROUND: Primary hemophagocytic lymphohistiocytosis (pHLH) is a rare and life-threatening disorder, which usually occurs during infancy or early childhood and is characterized by abnormal activation of the immune system. However, the burden of pHLH on children and their families has not been prev...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8101208/ https://www.ncbi.nlm.nih.gov/pubmed/33957935 http://dx.doi.org/10.1186/s13023-021-01832-2 |