Measuring the impact of hemophilia on families: Development of the Hemophilia Family Impact Tool (H‐FIT)

INTRODUCTION: This study aimed to assess the impact of hemophilia on families, in the context of current and emerging hemostatic therapies, and explore the need for a hemophilia‐specific tool targeted at parents of boys aged <4 years. A secondary aim was to develop and validate the new tool. METH...

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Detalles Bibliográficos
Autores principales: Dover, Saunya, Young, Nancy L., Blanchette, Victor S., Klaassen, Robert J., Chan, Anthony K., Wakefield, Cindy, Bouskill, Vanessa, Carcao, Manuel, Belletrutti, Mark, Bruce, Aisha A. K., Price, Victoria E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Original Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8114030/
https://www.ncbi.nlm.nih.gov/pubmed/34013152
http://dx.doi.org/10.1002/rth2.12519

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8114030/
https://www.ncbi.nlm.nih.gov/pubmed/34013152
http://dx.doi.org/10.1002/rth2.12519

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