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Being the Pillar for Children with Rare Diseases—A Systematic Review on Parental Quality of Life
Parents caring for children with rare diseases fear the long-term progression of the child’s disease. The current study aims to systematically investigate the quality of life (QoL) in parents of children with different rare diseases. We performed a systematic literature search including quantitative...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8125857/ https://www.ncbi.nlm.nih.gov/pubmed/34066738 http://dx.doi.org/10.3390/ijerph18094993 |