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Being the Pillar for Children with Rare Diseases—A Systematic Review on Parental Quality of Life

Parents caring for children with rare diseases fear the long-term progression of the child’s disease. The current study aims to systematically investigate the quality of life (QoL) in parents of children with different rare diseases. We performed a systematic literature search including quantitative...

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Detalles Bibliográficos
Autores principales:	Boettcher, Johannes, Boettcher, Michael, Wiegand-Grefe, Silke, Zapf, Holger
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	MDPI 2021
Materias:	Systematic Review
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8125857/ https://www.ncbi.nlm.nih.gov/pubmed/34066738 http://dx.doi.org/10.3390/ijerph18094993

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