Understanding what matters most to patients in acute care in seven countries, using the flash mob study design

BACKGROUND: Truly patient-centred care needs to be aligned with what patients consider important, and is highly desirable in the first 24 h of an acute admission, as many decisions are made during this period. However, there is limited knowledge on what matters most to patients in this phase of thei...

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Autores principales: van den Ende, Eva S., Schouten, Bo, Kremers, Marjolein N. T., Cooksley, Tim, Subbe, Chris P., Weichert, Immo, van Galen, Louise S., Haak, Harm R., Kellett, John, Alsma, Jelmer, Siegrist, Victoria, Holland, Mark, Christensen, Erika F., Graham, Colin A., Yan, L. E. U. N. G. Ling, Laugesen, Line E., Merten, Hanneke, Mir, Fraz, Kidney, Rachel M., Brabrand, Mikkel, Nanayakkara, Prabath W. B., Nickel, Christian H.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8132421/
https://www.ncbi.nlm.nih.gov/pubmed/34011321
http://dx.doi.org/10.1186/s12913-021-06459-4
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author van den Ende, Eva S.
Schouten, Bo
Kremers, Marjolein N. T.
Cooksley, Tim
Subbe, Chris P.
Weichert, Immo
van Galen, Louise S.
Haak, Harm R.
Kellett, John
Alsma, Jelmer
Siegrist, Victoria
Holland, Mark
Christensen, Erika F.
Graham, Colin A.
Yan, L. E. U. N. G. Ling
Laugesen, Line E.
Merten, Hanneke
Mir, Fraz
Kidney, Rachel M.
Brabrand, Mikkel
Nanayakkara, Prabath W. B.
Nickel, Christian H.
author_facet van den Ende, Eva S.
Schouten, Bo
Kremers, Marjolein N. T.
Cooksley, Tim
Subbe, Chris P.
Weichert, Immo
van Galen, Louise S.
Haak, Harm R.
Kellett, John
Alsma, Jelmer
Siegrist, Victoria
Holland, Mark
Christensen, Erika F.
Graham, Colin A.
Yan, L. E. U. N. G. Ling
Laugesen, Line E.
Merten, Hanneke
Mir, Fraz
Kidney, Rachel M.
Brabrand, Mikkel
Nanayakkara, Prabath W. B.
Nickel, Christian H.
author_sort van den Ende, Eva S.
collection PubMed
description BACKGROUND: Truly patient-centred care needs to be aligned with what patients consider important, and is highly desirable in the first 24 h of an acute admission, as many decisions are made during this period. However, there is limited knowledge on what matters most to patients in this phase of their hospital stay. The objective of this study was to identify what mattered most to patients in acute care and to assess the patient perspective as to whether their treating doctors were aware of this. METHODS: This was a large-scale, qualitative, flash mob study, conducted simultaneously in sixty-six hospitals in seven countries, starting November 14th 2018, ending 50 h later. One thousand eight hundred fifty adults in the first 24 h of an acute medical admission were interviewed on what mattered most to them, why this mattered and whether they felt the treating doctor was aware of this. RESULTS: The most reported answers to “what matters most (and why)?” were ‘getting better or being in good health’ (why: to be with family/friends or pick-up life again), ‘getting home’ (why: more comfortable at home or to take care of someone) and ‘having a diagnosis’ (why: to feel less anxious or insecure). Of all patients, 51.9% felt the treating doctor did not know what mattered most to them. CONCLUSIONS: The priorities for acutely admitted patients were ostensibly disease- and care-oriented and thus in line with the hospitals’ own priorities. However, answers to why these were important were diverse, more personal, and often related to psychological well-being and relations. A large group of patients felt their treating doctor did not know what mattered most to them. Explicitly asking patients what is important and why, could help healthcare professionals to get to know the person behind the patient, which is essential in delivering patient-centred care. TRIAL REGISTRATION: NTR (Netherlands Trial Register) NTR7538. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12913-021-06459-4.
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spelling pubmed-81324212021-05-19 Understanding what matters most to patients in acute care in seven countries, using the flash mob study design van den Ende, Eva S. Schouten, Bo Kremers, Marjolein N. T. Cooksley, Tim Subbe, Chris P. Weichert, Immo van Galen, Louise S. Haak, Harm R. Kellett, John Alsma, Jelmer Siegrist, Victoria Holland, Mark Christensen, Erika F. Graham, Colin A. Yan, L. E. U. N. G. Ling Laugesen, Line E. Merten, Hanneke Mir, Fraz Kidney, Rachel M. Brabrand, Mikkel Nanayakkara, Prabath W. B. Nickel, Christian H. BMC Health Serv Res Research Article BACKGROUND: Truly patient-centred care needs to be aligned with what patients consider important, and is highly desirable in the first 24 h of an acute admission, as many decisions are made during this period. However, there is limited knowledge on what matters most to patients in this phase of their hospital stay. The objective of this study was to identify what mattered most to patients in acute care and to assess the patient perspective as to whether their treating doctors were aware of this. METHODS: This was a large-scale, qualitative, flash mob study, conducted simultaneously in sixty-six hospitals in seven countries, starting November 14th 2018, ending 50 h later. One thousand eight hundred fifty adults in the first 24 h of an acute medical admission were interviewed on what mattered most to them, why this mattered and whether they felt the treating doctor was aware of this. RESULTS: The most reported answers to “what matters most (and why)?” were ‘getting better or being in good health’ (why: to be with family/friends or pick-up life again), ‘getting home’ (why: more comfortable at home or to take care of someone) and ‘having a diagnosis’ (why: to feel less anxious or insecure). Of all patients, 51.9% felt the treating doctor did not know what mattered most to them. CONCLUSIONS: The priorities for acutely admitted patients were ostensibly disease- and care-oriented and thus in line with the hospitals’ own priorities. However, answers to why these were important were diverse, more personal, and often related to psychological well-being and relations. A large group of patients felt their treating doctor did not know what mattered most to them. Explicitly asking patients what is important and why, could help healthcare professionals to get to know the person behind the patient, which is essential in delivering patient-centred care. TRIAL REGISTRATION: NTR (Netherlands Trial Register) NTR7538. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12913-021-06459-4. BioMed Central 2021-05-19 /pmc/articles/PMC8132421/ /pubmed/34011321 http://dx.doi.org/10.1186/s12913-021-06459-4 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research Article
van den Ende, Eva S.
Schouten, Bo
Kremers, Marjolein N. T.
Cooksley, Tim
Subbe, Chris P.
Weichert, Immo
van Galen, Louise S.
Haak, Harm R.
Kellett, John
Alsma, Jelmer
Siegrist, Victoria
Holland, Mark
Christensen, Erika F.
Graham, Colin A.
Yan, L. E. U. N. G. Ling
Laugesen, Line E.
Merten, Hanneke
Mir, Fraz
Kidney, Rachel M.
Brabrand, Mikkel
Nanayakkara, Prabath W. B.
Nickel, Christian H.
Understanding what matters most to patients in acute care in seven countries, using the flash mob study design
title Understanding what matters most to patients in acute care in seven countries, using the flash mob study design
title_full Understanding what matters most to patients in acute care in seven countries, using the flash mob study design
title_fullStr Understanding what matters most to patients in acute care in seven countries, using the flash mob study design
title_full_unstemmed Understanding what matters most to patients in acute care in seven countries, using the flash mob study design
title_short Understanding what matters most to patients in acute care in seven countries, using the flash mob study design
title_sort understanding what matters most to patients in acute care in seven countries, using the flash mob study design
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8132421/
https://www.ncbi.nlm.nih.gov/pubmed/34011321
http://dx.doi.org/10.1186/s12913-021-06459-4
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