A policy Delphi study to validate the key implications of data sharing (KIDS) framework for pediatric genomics in Canada

BACKGROUND: The highly sensitive nature of genomic and associated clinical data, coupled with the consent-related vulnerabilities of children together accentuate ethical, legal and social issues (ELSI) concerning data sharing. The Key Implications of Data Sharing (KIDS) framework was therefore devel...

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Detalles Bibliográficos
Autores principales: Rahimzadeh, Vasiliki, Bartlett, Gillian, Knoppers, Bartha Maria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8191056/
https://www.ncbi.nlm.nih.gov/pubmed/34107925
http://dx.doi.org/10.1186/s12910-021-00635-1

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8191056/
https://www.ncbi.nlm.nih.gov/pubmed/34107925
http://dx.doi.org/10.1186/s12910-021-00635-1

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