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A policy Delphi study to validate the key implications of data sharing (KIDS) framework for pediatric genomics in Canada
BACKGROUND: The highly sensitive nature of genomic and associated clinical data, coupled with the consent-related vulnerabilities of children together accentuate ethical, legal and social issues (ELSI) concerning data sharing. The Key Implications of Data Sharing (KIDS) framework was therefore devel...
| Autores principales: | , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2021
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8191056/ https://www.ncbi.nlm.nih.gov/pubmed/34107925 http://dx.doi.org/10.1186/s12910-021-00635-1 |