Assessing Health-Related Quality of Life, Morbidity, and Survival Status for Individuals With Down Syndrome in Pakistan (DS-Pak): Protocol for a Web-Based Collaborative Registry

BACKGROUND: Down syndrome is the most common chromosomal disorder, with a global incidence of 1 in 700 live births. However, the true prevalence, associated morbidities, and health-related quality of life (HRQOL) of these individuals and their families are not well documented, especially in low- and...

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Detalles Bibliográficos
Autores principales: Siddiqui, Ayat, Ladak, Laila Akbar, Kazi, Abdul Momin, Kaleem, Sidra, Akbar, Fizza, Kirmani, Salman
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2021
Materias:
Proposal
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8212620/
https://www.ncbi.nlm.nih.gov/pubmed/34081014
http://dx.doi.org/10.2196/24901

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8212620/
https://www.ncbi.nlm.nih.gov/pubmed/34081014
http://dx.doi.org/10.2196/24901

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