“Suddenly we have hope that there is a future”: two families’ narratives when a child with spinal muscular atrophy receives a new drug

Purpose: This study aims to explore negotiations of hope in everyday life for families where a child with spinal muscular atrophy (SMA) has received a new drug treatment. Methods: A narrative design was used, drawing on interviews and participant observations in two families with children with SMA,...

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Detalles Bibliográficos
Autores principales: Hjorth, Elin, Lövgren, Malin, Kreicbergs, Ulrika, Sejersen, Thomas, Asaba, Eric
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Taylor & Francis 2021
Materias:
Empirical Studies
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8216061/
https://www.ncbi.nlm.nih.gov/pubmed/33789523
http://dx.doi.org/10.1080/17482631.2021.1904722

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8216061/
https://www.ncbi.nlm.nih.gov/pubmed/33789523
http://dx.doi.org/10.1080/17482631.2021.1904722

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