Development of the Fabry Disease Patient-Reported Outcome (FD-PRO): a new instrument to measure the symptoms and impacts of Fabry Disease

BACKGROUND: The systematic collection of disease-specific symptoms and impacts on the lives of patients with Fabry Disease (FD) can offer unique insights into the patient experience, yet no disease-specific tool to measure FD symptoms exists. This study describes the development of the Fabry Disease...

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Detalles Bibliográficos
Autores principales: Hamed, Alaa, DasMahapatra, Pronabesh, Lyn, Nicole, Gwaltney, Chad, Hopkin, Robert J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8235809/
https://www.ncbi.nlm.nih.gov/pubmed/34172077
http://dx.doi.org/10.1186/s13023-021-01894-2

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8235809/
https://www.ncbi.nlm.nih.gov/pubmed/34172077
http://dx.doi.org/10.1186/s13023-021-01894-2

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