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Experiences of mothers caring for a child with an intellectual disability during the COVID‐19 pandemic in the Netherlands

BACKGROUND: During the first COVID‐19 lockdown period, various restrictions led to diminished access to both educational and professional support systems for children with an intellectual disability and their families. The aim of this study was to explore the experiences and needs of parents caring...

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Autores principales: Embregts, P., Heerkens, L., Frielink, N., Giesbers, S., Vromans, L., Jahoda, A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8242374/
https://www.ncbi.nlm.nih.gov/pubmed/34076326
http://dx.doi.org/10.1111/jir.12859
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author Embregts, P.
Heerkens, L.
Frielink, N.
Giesbers, S.
Vromans, L.
Jahoda, A.
author_facet Embregts, P.
Heerkens, L.
Frielink, N.
Giesbers, S.
Vromans, L.
Jahoda, A.
author_sort Embregts, P.
collection PubMed
description BACKGROUND: During the first COVID‐19 lockdown period, various restrictions led to diminished access to both educational and professional support systems for children with an intellectual disability and their families. The aim of this study was to explore the experiences and needs of parents caring for a child with an intellectual disability during the first lockdown period in the Netherlands. METHOD: Five mothers caring for a child with an intellectual disability participated in this qualitative study. The participants were interviewed using a semi‐structured interview guide. The interviews lasted between 26 and 48 min. The interview recordings were transcribed verbatim, and the transcripts were analysed thematically. RESULTS: Three overarching themes emerged: (1) We need to stay healthy, which centres on the mother's urge to protect their child's well‐being; (2) We make it work, which provides insight into how the mothers were handling the drastic changes in their family; and (3) My child's and family's place in the world, which focuses on the mothers' experienced position in the world around them. CONCLUSIONS: The current study provides valuable insights into the experiences and needs of mothers caring for a child with an intellectual disability during the COVID‐19 pandemic.
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spelling pubmed-82423742021-07-01 Experiences of mothers caring for a child with an intellectual disability during the COVID‐19 pandemic in the Netherlands Embregts, P. Heerkens, L. Frielink, N. Giesbers, S. Vromans, L. Jahoda, A. J Intellect Disabil Res COVID‐19 Special Section BACKGROUND: During the first COVID‐19 lockdown period, various restrictions led to diminished access to both educational and professional support systems for children with an intellectual disability and their families. The aim of this study was to explore the experiences and needs of parents caring for a child with an intellectual disability during the first lockdown period in the Netherlands. METHOD: Five mothers caring for a child with an intellectual disability participated in this qualitative study. The participants were interviewed using a semi‐structured interview guide. The interviews lasted between 26 and 48 min. The interview recordings were transcribed verbatim, and the transcripts were analysed thematically. RESULTS: Three overarching themes emerged: (1) We need to stay healthy, which centres on the mother's urge to protect their child's well‐being; (2) We make it work, which provides insight into how the mothers were handling the drastic changes in their family; and (3) My child's and family's place in the world, which focuses on the mothers' experienced position in the world around them. CONCLUSIONS: The current study provides valuable insights into the experiences and needs of mothers caring for a child with an intellectual disability during the COVID‐19 pandemic. John Wiley and Sons Inc. 2021-06-02 2021-08 /pmc/articles/PMC8242374/ /pubmed/34076326 http://dx.doi.org/10.1111/jir.12859 Text en © 2021 The Authors. Journal of Intellectual Disability Research published by MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disibilities and John Wiley & Sons Ltd. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle COVID‐19 Special Section
Embregts, P.
Heerkens, L.
Frielink, N.
Giesbers, S.
Vromans, L.
Jahoda, A.
Experiences of mothers caring for a child with an intellectual disability during the COVID‐19 pandemic in the Netherlands
title Experiences of mothers caring for a child with an intellectual disability during the COVID‐19 pandemic in the Netherlands
title_full Experiences of mothers caring for a child with an intellectual disability during the COVID‐19 pandemic in the Netherlands
title_fullStr Experiences of mothers caring for a child with an intellectual disability during the COVID‐19 pandemic in the Netherlands
title_full_unstemmed Experiences of mothers caring for a child with an intellectual disability during the COVID‐19 pandemic in the Netherlands
title_short Experiences of mothers caring for a child with an intellectual disability during the COVID‐19 pandemic in the Netherlands
title_sort experiences of mothers caring for a child with an intellectual disability during the covid‐19 pandemic in the netherlands
topic COVID‐19 Special Section
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8242374/
https://www.ncbi.nlm.nih.gov/pubmed/34076326
http://dx.doi.org/10.1111/jir.12859
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