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What guidance does HIPAA offer to providers considering familial risk notification and cascade genetic testing?

BACKGROUND: It is unclear how the Health Insurance Portability and Accountability Act (HIPAA) should be interpreted in the context of sharing of genomic information between family members. METHODS: The authors analyzed the HIPAA Privacy Rule, reviewed the literature and constructed a clinical scenar...

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Detalles Bibliográficos
Autores principales: Henrikson, Nora B, Wagner, Jennifer K, Hampel, Heather, DeVore, Christopher, Shridhar, Nirupama, Williams, Janet L, Donohue, Katherine E, Kullo, Iftikhar, Prince, Anya E R
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8249115/
https://www.ncbi.nlm.nih.gov/pubmed/34221429
http://dx.doi.org/10.1093/jlb/lsaa071