International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis

Pediatric thromboembolism is a rare and heterogenous disease. As a result, there is a paucity of knowledge with regard to natural history, management, and outcomes of most types of pediatric venous and arterial thromboembolism. International research collaboration is needed to fill these knowledge g...

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Autores principales: van Ommen, C. Heleen, Albisetti, Manuela, Bhatt, Mohir, Bonduel, Marianne, Branchford, Brian, Chalmers, Elizabeth, Chan, Anthony, Goldenberg, Neil A., Holzhauer, Susanne, Monagle, Paul, Nowak‐Göttl, Ulrike, Revel‐Vilk, Shoshana, Sciuccatie, Gabriela, Sirachainan, Nongnuch, Male, Christoph
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8252713/
https://www.ncbi.nlm.nih.gov/pubmed/33792176
http://dx.doi.org/10.1111/jth.15260
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author van Ommen, C. Heleen
Albisetti, Manuela
Bhatt, Mohir
Bonduel, Marianne
Branchford, Brian
Chalmers, Elizabeth
Chan, Anthony
Goldenberg, Neil A.
Holzhauer, Susanne
Monagle, Paul
Nowak‐Göttl, Ulrike
Revel‐Vilk, Shoshana
Sciuccatie, Gabriela
Sirachainan, Nongnuch
Male, Christoph
author_facet van Ommen, C. Heleen
Albisetti, Manuela
Bhatt, Mohir
Bonduel, Marianne
Branchford, Brian
Chalmers, Elizabeth
Chan, Anthony
Goldenberg, Neil A.
Holzhauer, Susanne
Monagle, Paul
Nowak‐Göttl, Ulrike
Revel‐Vilk, Shoshana
Sciuccatie, Gabriela
Sirachainan, Nongnuch
Male, Christoph
author_sort van Ommen, C. Heleen
collection PubMed
description Pediatric thromboembolism is a rare and heterogenous disease. As a result, there is a paucity of knowledge with regard to natural history, management, and outcomes of most types of pediatric venous and arterial thromboembolism. International research collaboration is needed to fill these knowledge gaps. Not only randomized controlled trials, but also representative observational studies are required to answer all research questions. Therefore, the ISTH SSC Subcommittee on Pediatric and Neonatal Thrombosis and Hemostasis initiated the International Pediatric Thrombosis Network (IPTN). The aims of the IPTN include (1) development of the Throm‐PED registry to facilitate international prospective observational studies, and (2) establishment of a network of pediatric thrombosis centers experienced in effectively conducting clinical trials and observational studies. The IPTN needs dedicated clinicians all over the world and several funding sources to obtain high‐quality research data to reach its ultimate goal of improving care in children with thrombosis. The aim of this communication is to call for active participation in the IPTN to all physicians taking care of children with thrombosis worldwide.
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spelling pubmed-82527132021-07-12 International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis van Ommen, C. Heleen Albisetti, Manuela Bhatt, Mohir Bonduel, Marianne Branchford, Brian Chalmers, Elizabeth Chan, Anthony Goldenberg, Neil A. Holzhauer, Susanne Monagle, Paul Nowak‐Göttl, Ulrike Revel‐Vilk, Shoshana Sciuccatie, Gabriela Sirachainan, Nongnuch Male, Christoph J Thromb Haemost Isth Ssc Communications Pediatric thromboembolism is a rare and heterogenous disease. As a result, there is a paucity of knowledge with regard to natural history, management, and outcomes of most types of pediatric venous and arterial thromboembolism. International research collaboration is needed to fill these knowledge gaps. Not only randomized controlled trials, but also representative observational studies are required to answer all research questions. Therefore, the ISTH SSC Subcommittee on Pediatric and Neonatal Thrombosis and Hemostasis initiated the International Pediatric Thrombosis Network (IPTN). The aims of the IPTN include (1) development of the Throm‐PED registry to facilitate international prospective observational studies, and (2) establishment of a network of pediatric thrombosis centers experienced in effectively conducting clinical trials and observational studies. The IPTN needs dedicated clinicians all over the world and several funding sources to obtain high‐quality research data to reach its ultimate goal of improving care in children with thrombosis. The aim of this communication is to call for active participation in the IPTN to all physicians taking care of children with thrombosis worldwide. John Wiley and Sons Inc. 2021-03-31 2021-04 /pmc/articles/PMC8252713/ /pubmed/33792176 http://dx.doi.org/10.1111/jth.15260 Text en © 2021 The Authors. Journal of Thrombosis and Haemostasis published by Wiley Periodicals LLC on behalf of International Society on Thrombosis and Haemostasis. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Isth Ssc Communications
van Ommen, C. Heleen
Albisetti, Manuela
Bhatt, Mohir
Bonduel, Marianne
Branchford, Brian
Chalmers, Elizabeth
Chan, Anthony
Goldenberg, Neil A.
Holzhauer, Susanne
Monagle, Paul
Nowak‐Göttl, Ulrike
Revel‐Vilk, Shoshana
Sciuccatie, Gabriela
Sirachainan, Nongnuch
Male, Christoph
International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis
title International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis
title_full International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis
title_fullStr International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis
title_full_unstemmed International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis
title_short International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis
title_sort international pediatric thrombosis network to advance pediatric thrombosis research: communication from the isth ssc subcommittee on pediatric and neonatal thrombosis and hemostasis
topic Isth Ssc Communications
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8252713/
https://www.ncbi.nlm.nih.gov/pubmed/33792176
http://dx.doi.org/10.1111/jth.15260
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