International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis
Pediatric thromboembolism is a rare and heterogenous disease. As a result, there is a paucity of knowledge with regard to natural history, management, and outcomes of most types of pediatric venous and arterial thromboembolism. International research collaboration is needed to fill these knowledge g...
Autores principales: | , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8252713/ https://www.ncbi.nlm.nih.gov/pubmed/33792176 http://dx.doi.org/10.1111/jth.15260 |
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author | van Ommen, C. Heleen Albisetti, Manuela Bhatt, Mohir Bonduel, Marianne Branchford, Brian Chalmers, Elizabeth Chan, Anthony Goldenberg, Neil A. Holzhauer, Susanne Monagle, Paul Nowak‐Göttl, Ulrike Revel‐Vilk, Shoshana Sciuccatie, Gabriela Sirachainan, Nongnuch Male, Christoph |
author_facet | van Ommen, C. Heleen Albisetti, Manuela Bhatt, Mohir Bonduel, Marianne Branchford, Brian Chalmers, Elizabeth Chan, Anthony Goldenberg, Neil A. Holzhauer, Susanne Monagle, Paul Nowak‐Göttl, Ulrike Revel‐Vilk, Shoshana Sciuccatie, Gabriela Sirachainan, Nongnuch Male, Christoph |
author_sort | van Ommen, C. Heleen |
collection | PubMed |
description | Pediatric thromboembolism is a rare and heterogenous disease. As a result, there is a paucity of knowledge with regard to natural history, management, and outcomes of most types of pediatric venous and arterial thromboembolism. International research collaboration is needed to fill these knowledge gaps. Not only randomized controlled trials, but also representative observational studies are required to answer all research questions. Therefore, the ISTH SSC Subcommittee on Pediatric and Neonatal Thrombosis and Hemostasis initiated the International Pediatric Thrombosis Network (IPTN). The aims of the IPTN include (1) development of the Throm‐PED registry to facilitate international prospective observational studies, and (2) establishment of a network of pediatric thrombosis centers experienced in effectively conducting clinical trials and observational studies. The IPTN needs dedicated clinicians all over the world and several funding sources to obtain high‐quality research data to reach its ultimate goal of improving care in children with thrombosis. The aim of this communication is to call for active participation in the IPTN to all physicians taking care of children with thrombosis worldwide. |
format | Online Article Text |
id | pubmed-8252713 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-82527132021-07-12 International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis van Ommen, C. Heleen Albisetti, Manuela Bhatt, Mohir Bonduel, Marianne Branchford, Brian Chalmers, Elizabeth Chan, Anthony Goldenberg, Neil A. Holzhauer, Susanne Monagle, Paul Nowak‐Göttl, Ulrike Revel‐Vilk, Shoshana Sciuccatie, Gabriela Sirachainan, Nongnuch Male, Christoph J Thromb Haemost Isth Ssc Communications Pediatric thromboembolism is a rare and heterogenous disease. As a result, there is a paucity of knowledge with regard to natural history, management, and outcomes of most types of pediatric venous and arterial thromboembolism. International research collaboration is needed to fill these knowledge gaps. Not only randomized controlled trials, but also representative observational studies are required to answer all research questions. Therefore, the ISTH SSC Subcommittee on Pediatric and Neonatal Thrombosis and Hemostasis initiated the International Pediatric Thrombosis Network (IPTN). The aims of the IPTN include (1) development of the Throm‐PED registry to facilitate international prospective observational studies, and (2) establishment of a network of pediatric thrombosis centers experienced in effectively conducting clinical trials and observational studies. The IPTN needs dedicated clinicians all over the world and several funding sources to obtain high‐quality research data to reach its ultimate goal of improving care in children with thrombosis. The aim of this communication is to call for active participation in the IPTN to all physicians taking care of children with thrombosis worldwide. John Wiley and Sons Inc. 2021-03-31 2021-04 /pmc/articles/PMC8252713/ /pubmed/33792176 http://dx.doi.org/10.1111/jth.15260 Text en © 2021 The Authors. Journal of Thrombosis and Haemostasis published by Wiley Periodicals LLC on behalf of International Society on Thrombosis and Haemostasis. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made. |
spellingShingle | Isth Ssc Communications van Ommen, C. Heleen Albisetti, Manuela Bhatt, Mohir Bonduel, Marianne Branchford, Brian Chalmers, Elizabeth Chan, Anthony Goldenberg, Neil A. Holzhauer, Susanne Monagle, Paul Nowak‐Göttl, Ulrike Revel‐Vilk, Shoshana Sciuccatie, Gabriela Sirachainan, Nongnuch Male, Christoph International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis |
title | International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis |
title_full | International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis |
title_fullStr | International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis |
title_full_unstemmed | International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis |
title_short | International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis |
title_sort | international pediatric thrombosis network to advance pediatric thrombosis research: communication from the isth ssc subcommittee on pediatric and neonatal thrombosis and hemostasis |
topic | Isth Ssc Communications |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8252713/ https://www.ncbi.nlm.nih.gov/pubmed/33792176 http://dx.doi.org/10.1111/jth.15260 |
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