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Navigating the U.S. health insurance landscape for children with rare diseases: a qualitative study of parents’ experiences

BACKGROUND: Parents of children with rare diseases often face uncertainty about diagnosis, treatment, and costs associated with healthcare for their child. Health insurance status impacts each of these areas, but no U.S. study has explored parents’ perceptions of the health insurance impacts on thei...

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Detalles Bibliográficos
Autores principales: Pasquini, Tai L. S., Goff, Sarah L., Whitehill, Jennifer M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8281562/
https://www.ncbi.nlm.nih.gov/pubmed/34266466
http://dx.doi.org/10.1186/s13023-021-01943-w