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Family Experiences with Care for Children with Inherited Metabolic Diseases in Canada: A Cross-Sectional Survey
BACKGROUND AND OBJECTIVE: Children with inherited metabolic diseases often require complex and highly specialized care. Patient and family-centered care can improve health outcomes that are important to families. This study aimed to examine experiences of family caregivers (parents/guardians) of chi...
Autores principales: | , , , , , , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8289623/ https://www.ncbi.nlm.nih.gov/pubmed/34282509 http://dx.doi.org/10.1007/s40271-021-00538-8 |