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The Longitudinal Pediatric Data Resource: Facilitating Longitudinal Collection of Health Information to Inform Clinical Care and Guide Newborn Screening Efforts

The goal of newborn screening is to improve health outcomes by identifying and treating affected newborns. This manuscript provides an overview of a data tool to facilitate the longitudinal collection of health information on newborns diagnosed with a condition through NBS. The Newborn Screening Tra...

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Detalles Bibliográficos
Autores principales: Brower, Amy, Chan, Kee, Hartnett, Michael, Taylor, Jennifer
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8293037/
https://www.ncbi.nlm.nih.gov/pubmed/34208910
http://dx.doi.org/10.3390/ijns7030037