A questionnaire-based study to comprehensively assess the status quo of rare disease patients and care-givers in China

BACKGROUND: There are over 16.8 million rare disease patients in China, representing a large community that should not be neglected. While the public lack the awareness of their existence and difficult status quo, for one reason that they exist as a rare and special group in our society, for another...

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Detalles Bibliográficos
Autores principales: Li, Xuefeng, Liu, Meiling, Lin, Jinduan, Li, Bingzhe, Zhang, Xiangyu, Zhang, Shu, Lu, Zijuan, Zhang, Jianyong, Zhou, Jincheng, Ou, Li
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8296703/
https://www.ncbi.nlm.nih.gov/pubmed/34294091
http://dx.doi.org/10.1186/s13023-021-01954-7

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8296703/
https://www.ncbi.nlm.nih.gov/pubmed/34294091
http://dx.doi.org/10.1186/s13023-021-01954-7

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