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A questionnaire-based study to comprehensively assess the status quo of rare disease patients and care-givers in China
BACKGROUND: There are over 16.8 million rare disease patients in China, representing a large community that should not be neglected. While the public lack the awareness of their existence and difficult status quo, for one reason that they exist as a rare and special group in our society, for another...
| Autores principales: | , , , , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2021
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8296703/ https://www.ncbi.nlm.nih.gov/pubmed/34294091 http://dx.doi.org/10.1186/s13023-021-01954-7 |