Quality of Life Outcomes According to Differential Nusinersen Exposure in Pediatric Spinal Muscular Atrophy

The purpose of this study was to explore early changes in patient and family caregiver report of quality of life and family impact during the transitional period of nusinersen use. Communication; family relationships; physical, emotional, social, and cognitive functioning; and daily activities were...

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Detalles Bibliográficos
Autores principales: Weaver, Meaghann S., Yuroff, Alice, Sund, Sarah, Hetzel, Scott, Halanski, Matthew A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8305818/
https://www.ncbi.nlm.nih.gov/pubmed/34356583
http://dx.doi.org/10.3390/children8070604

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8305818/
https://www.ncbi.nlm.nih.gov/pubmed/34356583
http://dx.doi.org/10.3390/children8070604

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