Social and medical needs of rare metabolic patients: results from a MetabERN survey

BACKGROUND: Many surveys have been performed over the years to assess the medical and social requirements of patients with a rare disease, but no studies have focused specifically on patients in Europe or with an inherited metabolic disease (IMD). To obtain a comprehensive overview of the social and...

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Detalles Bibliográficos
Autores principales: Sestini, Sylvia, Paneghetti, Laura, Lampe, Christina, Betti, Gianni, Bond, Simon, Bellettato, Cinzia Maria, Maurizio, Scarpa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8329639/
https://www.ncbi.nlm.nih.gov/pubmed/34344397
http://dx.doi.org/10.1186/s13023-021-01948-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8329639/
https://www.ncbi.nlm.nih.gov/pubmed/34344397
http://dx.doi.org/10.1186/s13023-021-01948-5

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