Cargando…
Social and medical needs of rare metabolic patients: results from a MetabERN survey
BACKGROUND: Many surveys have been performed over the years to assess the medical and social requirements of patients with a rare disease, but no studies have focused specifically on patients in Europe or with an inherited metabolic disease (IMD). To obtain a comprehensive overview of the social and...
| Autores principales: | , , , , , , |
|---|---|
| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2021
|
| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8329639/ https://www.ncbi.nlm.nih.gov/pubmed/34344397 http://dx.doi.org/10.1186/s13023-021-01948-5 |