Impact of the COVID-19 pandemic on the standard of care for patients with lysosomal storage diseases: A survey of healthcare professionals in the Fabry, Gaucher, and Hunter Outcome Survey registries

The impact of the COVID-19 pandemic on the standards of care of patients with lysosomal storage diseases and the needs of their healthcare providers were explored using a 12-question survey. Overall, 80/91 respondents (88%) indicated that the pandemic had negatively affected standards of care. With...

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Detalles Bibliográficos
Autores principales: Elstein, Deborah, Giugliani, Roberto, Muenzer, Joseph, Schenk, Jörn, Schwartz, Ida V.D., Anagnostopoulou, Christina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2021
Materias:
Short Communication
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8332928/
https://www.ncbi.nlm.nih.gov/pubmed/34367919
http://dx.doi.org/10.1016/j.ymgmr.2021.100788

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8332928/
https://www.ncbi.nlm.nih.gov/pubmed/34367919
http://dx.doi.org/10.1016/j.ymgmr.2021.100788

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