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Estimating the broader fiscal consequences of acute hepatic porphyria (AHP) with recurrent attacks in Belgium using a public economic analytic framework

BACKGROUND: Acute hepatic porphyria (AHP) is a rare, debilitating disease characterized by potentially life-threatening attacks often resulting in chronic symptoms that negatively impact daily functioning and quality of life. Symptoms of AHP prevent many individuals from working and achieving lifeti...

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Detalles Bibliográficos
Autores principales: Connolly, Mark P., Kotsopoulos, Nikos, Vermeersch, Sebastian, Patris, Julien, Cassiman, David
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8336398/
https://www.ncbi.nlm.nih.gov/pubmed/34348763
http://dx.doi.org/10.1186/s13023-021-01966-3