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Estimating the broader fiscal consequences of acute hepatic porphyria (AHP) with recurrent attacks in Belgium using a public economic analytic framework
BACKGROUND: Acute hepatic porphyria (AHP) is a rare, debilitating disease characterized by potentially life-threatening attacks often resulting in chronic symptoms that negatively impact daily functioning and quality of life. Symptoms of AHP prevent many individuals from working and achieving lifeti...
Autores principales: | Connolly, Mark P., Kotsopoulos, Nikos, Vermeersch, Sebastian, Patris, Julien, Cassiman, David |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8336398/ https://www.ncbi.nlm.nih.gov/pubmed/34348763 http://dx.doi.org/10.1186/s13023-021-01966-3 |
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