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Defining the Clinical, Emotional, Social, and Financial Burden of Congenital Athymia

INTRODUCTION: Characterize the burden of illness in pediatric patients with congen̄ital athymia who were receiving supportive care. METHODS: This cross-sectional study of adult caregivers of patients with congenital athymia used both a quantitative survey and qualitative interviews. Caregivers of pa...

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Detalles Bibliográficos
Autores principales: Hsieh, Elena W. Y., Kim-Chang, Julie J., Kulke, Sarah, Silber, Abigail, O’Hara, Matthew, Collins, Cathleen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Healthcare 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8342356/
https://www.ncbi.nlm.nih.gov/pubmed/34213759
http://dx.doi.org/10.1007/s12325-021-01820-9