Cargando…

Defining the Clinical, Emotional, Social, and Financial Burden of Congenital Athymia

INTRODUCTION: Characterize the burden of illness in pediatric patients with congen̄ital athymia who were receiving supportive care. METHODS: This cross-sectional study of adult caregivers of patients with congenital athymia used both a quantitative survey and qualitative interviews. Caregivers of pa...

Descripción completa

Detalles Bibliográficos
Autores principales:	Hsieh, Elena W. Y., Kim-Chang, Julie J., Kulke, Sarah, Silber, Abigail, O’Hara, Matthew, Collins, Cathleen
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Springer Healthcare 2021
Materias:	Original Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8342356/ https://www.ncbi.nlm.nih.gov/pubmed/34213759 http://dx.doi.org/10.1007/s12325-021-01820-9

Ejemplares similares

Congenital Athymia: Genetic Etiologies, Clinical Manifestations, Diagnosis, and Treatment
por: Collins, Cathleen, et al.
Publicado: (2021)

Congenital Athymia: Unmet Needs and Practical Guidance
por: Howley, Evey, et al.
Publicado: (2023)

Improving thymus implantation for congenital athymia with interleukin‐7
por: Min, Hyunjung, et al.
Publicado: (2023)

Immunodeficiency in DiGeorge Syndrome and Options for Treating Cases with Complete Athymia
por: Davies, E. Graham
Publicado: (2013)

Omenn syndrome in a 10-month-old male with athymia and VACTERL association
por: Pangli, Bimaljit K., et al.
Publicado: (2023)

Effects of emotional content on social inhibition of gaze in live social and non-social situations
por: Pasqualette, Laura, et al.
Publicado: (2023)

The Financial Burden of Surgery for Congenital Malformations—The Austrian Perspective
por: Gasparella, Paolo, et al.
Publicado: (2021)

Evaluating the burden of endogenous Cushing’s syndrome using a web-based questionnaire and validated patient-reported outcome measures
por: Page-Wilson, Gabrielle, et al.
Publicado: (2023)

Case Report: Unmanipulated Matched Sibling Donor Hematopoietic Cell Transplantation In TBX1 Congenital Athymia: A Lifesaving Therapeutic Approach When Facing a Systemic Viral Infection
por: Chitty-Lopez, Maria, et al.
Publicado: (2022)

Marked changes in innate immunity associated with a mild course of COVID-19 in identical twins with athymia and absent circulating T cells
por: Colmenero-Velázquez, Argentina, et al.
Publicado: (2021)

Defining the psychiatric and financial burden of mental and substance use disorders in cancer patients
por: Baliga, Sujith, et al.
Publicado: (2022)

The Emotional Lockdown: How Social Distancing and Mask Wearing Influence Mood and Emotion Recognition in Adolescents and Adults
por: Kulke, Louisa, et al.
Publicado: (2022)

Understanding Male Caregivers’ Emotional, Financial, and Physical Burden in the United States
por: Lopez–Anuarbe, Monika, et al.
Publicado: (2019)

Emotional, physical and financial burdens of stigma against people living with HIV/AIDS in China
por: Zhang, Chen, et al.
Publicado: (2016)

Association of dementia comorbidities with caregivers’ physical, psychological, social, and financial burden
por: Zhang, Jingyi, et al.
Publicado: (2023)

Patient-Reported Financial Burden Following Stereotactic Body Radiation Therapy for Localized Prostate Cancer
por: Sholklapper, Tamir N., et al.
Publicado: (2022)

Building an assessment of community‐defined social‐emotional competencies from the ground up in Tanzania
por: Jukes, Matthew C. H., et al.
Publicado: (2021)

Expanding research on the impact of financial hardship on emotional well-being: guidance of diverse stakeholders to the Emotional Well-Being and Economic Burden of Disease (EMOT-ECON) Research Network
por: Pisu, Maria, et al.
Publicado: (2023)

The Medical and Financial Burden of Illegal Abortion
por: Rivera Rodriguez, Grecia, et al.
Publicado: (2022)

Surviving COVID-19: financially and emotionally
Publicado: (2020)

Where financial and emotional wellbeing meet
por: Porter, Richard
Publicado: (2022)

The Interplay Between Financial Literacy, Financial Risk Tolerance, and Financial Behaviour: The Moderator Effect of Emotional Intelligence
por: Song, Cui Ling, et al.
Publicado: (2023)

Behavioral, emotional and social functioning in children born with congenital diaphragmatic hernia
por: Öst, Elin, et al.
Publicado: (2018)

Defining and Implementing Value-Based Health Care: A Strategic Framework
por: Teisberg, Elizabeth, et al.
Publicado: (2020)

Emotional Burden and Perceived Social Support in Male Partners of Women with Cancer
por: Jabłoński, Marcin J., et al.
Publicado: (2020)

The willingness of orthopaedic trauma patients in Uganda to accept financial loans following injury
por: O’Hara, Nathan N., et al.
Publicado: (2019)

Emotional aging: a discrete emotions perspective
por: Kunzmann, Ute, et al.
Publicado: (2014)

Financial Burden of Health Care Expenditures: Turkey
por: Sulku, S Nur, et al.
Publicado: (2012)

Mortality and Financial Burden of Periprosthetic Fractures of the Femur
por: Shields, Edward, et al.
Publicado: (2014)

Medical and financial burden of acute intermittent porphyria
por: Neeleman, Rochus A., et al.
Publicado: (2018)

The Financial Burden of Cancer on Families in the United States
por: Richard, Patrick, et al.
Publicado: (2021)

Financial Burden in Families of Children with West Syndrome
por: Raithatha, Dhvani, et al.
Publicado: (2021)

Financial Burden of Tuberculosis Patients — China, 2020
por: Xu, Caihong, et al.
Publicado: (2023)

Epidemiology and Financial Burden of Adult Chronic Hypoparathyroidism
por: Bjornsdottir, Sigridur, et al.
Publicado: (2022)

The financial burden of alopecia: a survey study
por: Ingrassia, Jenne P., et al.
Publicado: (2023)

Assessing the financial burden of hemodialysis treatment in Malaysia
por: Mohd Fadzli, Nur Fatin Aqilah, et al.
Publicado: (2021)

Editorial: Emotions and Cognition in Financial Decision-Making
por: Hinvest, Neal Stuart, et al.
Publicado: (2021)

Financial burden of catastrophic health expenditure on households with chronic diseases: financial ratio analysis
por: Jung, Hyunwoo, et al.
Publicado: (2022)

Hepatoblastoma in molecularly defined, congenital diseases
por: Nussbaumer, Gunther, et al.
Publicado: (2022)

Effects of COVID-19 on Older Adults: Physical, Mental, Emotional, Social, and Financial Problems Seen and Unseen
por: Cocuzzo, Brianna, et al.
Publicado: (2022)

Cannot write session to /tmp/vufind_sessions/sess_hkp34418t4j6evjd8ggk6n8btn