A qualitative study of the impacts of having an infant or young child with achondroplasia on parent well-being

BACKGROUND: Currently, there is limited research on how having a child diagnosed with achondroplasia affects parents’ lives. The purpose of the study was to investigate the experiences of parents of infants and young children less than two years of age with achondroplasia. METHODS: Concept elicitati...

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Detalles Bibliográficos
Autores principales: Pfeiffer, Kathryn M., Brod, Meryl, Smith, Alden, Viuff, Dorthe, Ota, Sho, Charlton, R. Will
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8344208/
https://www.ncbi.nlm.nih.gov/pubmed/34362417
http://dx.doi.org/10.1186/s13023-021-01978-z

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8344208/
https://www.ncbi.nlm.nih.gov/pubmed/34362417
http://dx.doi.org/10.1186/s13023-021-01978-z

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