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A qualitative study of the impacts of having an infant or young child with achondroplasia on parent well-being
BACKGROUND: Currently, there is limited research on how having a child diagnosed with achondroplasia affects parents’ lives. The purpose of the study was to investigate the experiences of parents of infants and young children less than two years of age with achondroplasia. METHODS: Concept elicitati...
| Autores principales: | , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2021
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8344208/ https://www.ncbi.nlm.nih.gov/pubmed/34362417 http://dx.doi.org/10.1186/s13023-021-01978-z |