The Patients' Experiences of Burden of Neurofibromatosis: A Qualitative Study

BACKGROUND: Neurofibromatosis Type 1 (NF1) is a common autosomal disorder; the criteria for the diagnosis of NF1 includes café au lait spots, freckling, and Neurofibromas (NF). Skin symptoms have a major impact on patients' Quality of Life (QOL) but little is known about the burden of the disea...

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Detalles Bibliográficos
Autores principales: Foji, Samira, Mohammadi, Eesa, Sanagoo, Akram, Jouybari, Leila
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer - Medknow 2021
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8344627/
https://www.ncbi.nlm.nih.gov/pubmed/34422615
http://dx.doi.org/10.4103/ijnmr.IJNMR_178_20

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8344627/
https://www.ncbi.nlm.nih.gov/pubmed/34422615
http://dx.doi.org/10.4103/ijnmr.IJNMR_178_20

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