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The Patients' Experiences of Burden of Neurofibromatosis: A Qualitative Study
BACKGROUND: Neurofibromatosis Type 1 (NF1) is a common autosomal disorder; the criteria for the diagnosis of NF1 includes café au lait spots, freckling, and Neurofibromas (NF). Skin symptoms have a major impact on patients' Quality of Life (QOL) but little is known about the burden of the disea...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Wolters Kluwer - Medknow
2021
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8344627/ https://www.ncbi.nlm.nih.gov/pubmed/34422615 http://dx.doi.org/10.4103/ijnmr.IJNMR_178_20 |