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Economic burden and health related quality of life of ultra-rare Gaucher disease in China
BACKGROUND: The diagnosis and health care of patients with rare diseases present a tremendous challenge worldwide. This study described the health care service utilization through participants’ perspective and estimated the cost of illness (COI), and patients with Gaucher disease (GD)’s/caregivers’...
Autores principales: | , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8356434/ https://www.ncbi.nlm.nih.gov/pubmed/34380529 http://dx.doi.org/10.1186/s13023-021-01963-6 |