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Economic burden and health related quality of life of ultra-rare Gaucher disease in China

BACKGROUND: The diagnosis and health care of patients with rare diseases present a tremendous challenge worldwide. This study described the health care service utilization through participants’ perspective and estimated the cost of illness (COI), and patients with Gaucher disease (GD)’s/caregivers’...

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Detalles Bibliográficos
Autores principales:	Qi, Xinye, Xu, Jiao, Shan, Linghan, Li, Ye, Cui, Yu, Liu, Huan, Wang, Kexin, Gao, Lijun, Kang, Zheng, Wu, Qunhong
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2021
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8356434/ https://www.ncbi.nlm.nih.gov/pubmed/34380529 http://dx.doi.org/10.1186/s13023-021-01963-6

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