The Use of Patient-Reported Outcome Measures in Rare Diseases and Implications for Health Technology Assessment

BACKGROUND: Patient-reported outcome measures (PROMs) are used in health technology assessment (HTA) to measure patient experiences with disease and treatment, allowing a deeper understanding of treatment impact beyond clinical endpoints. Developing and administering PROMs for rare diseases poses un...

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Detalles Bibliográficos
Autores principales: Whittal, Amanda, Meregaglia, Michela, Nicod, Elena
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2021
Materias:
Review Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8357707/
https://www.ncbi.nlm.nih.gov/pubmed/33462774
http://dx.doi.org/10.1007/s40271-020-00493-w

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8357707/
https://www.ncbi.nlm.nih.gov/pubmed/33462774
http://dx.doi.org/10.1007/s40271-020-00493-w

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