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Barriers to Family Resilience in Caregivers of People Who Have Schizophrenia

PURPOSE: To explore the barriers to family resilience in caregivers of people who have schizophrenia. DESIGN: A qualitative descriptive approach was used. METHODS: Semistructured interviews were conducted with family caregivers of patients with schizophrenia registered at the psychiatry outpatient u...

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Autores principales: Fernandes, Júlio Belo, Fernandes, Sónia Belo, Almeida, Ana Silva, Cunningham, Rhona Cruzet
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8359939/
https://www.ncbi.nlm.nih.gov/pubmed/33780160
http://dx.doi.org/10.1111/jnu.12651
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author Fernandes, Júlio Belo
Fernandes, Sónia Belo
Almeida, Ana Silva
Cunningham, Rhona Cruzet
author_facet Fernandes, Júlio Belo
Fernandes, Sónia Belo
Almeida, Ana Silva
Cunningham, Rhona Cruzet
author_sort Fernandes, Júlio Belo
collection PubMed
description PURPOSE: To explore the barriers to family resilience in caregivers of people who have schizophrenia. DESIGN: A qualitative descriptive approach was used. METHODS: Semistructured interviews were conducted with family caregivers of patients with schizophrenia registered at the psychiatry outpatient unit of a hospital center. Content analysis was performed on audio‐recorded and verbatim‐transcribed interviews. The consolidated criteria for reporting qualitative research (COREQ) checklist was applied to this study. RESULTS: A total of 31 family caregivers participated, the majority of whom were female (71%) with an average age of 57.5 years. Most participants lived with and cared for their relative (90.3%). The caregiver role was assumed mostly by mothers (54.8%) and fathers (22.6%). Barriers to family resilience in caregivers of people experiencing schizophrenia broadly fall under five categories: lack of knowledge about the disease, social stigma, expressed emotion, involvement in the relationship, and blame. CONCLUSIONS: In view of the paucity of studies exploring and understanding the barriers to family resilience, this study presents itself as one of the first in this area. There are different barriers to family resilience. This research provides an overview and an understanding of key barriers to family resilience in caregivers of people experiencing schizophrenia. CLINICAL RELEVANCE: There is a need for nurses to help families to be resilient. By understanding the barriers to resilience, nurses are able to focus on these factors and help families to remove or reduce their influence.
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spelling pubmed-83599392021-08-17 Barriers to Family Resilience in Caregivers of People Who Have Schizophrenia Fernandes, Júlio Belo Fernandes, Sónia Belo Almeida, Ana Silva Cunningham, Rhona Cruzet J Nurs Scholarsh Clinical Scholarship PURPOSE: To explore the barriers to family resilience in caregivers of people who have schizophrenia. DESIGN: A qualitative descriptive approach was used. METHODS: Semistructured interviews were conducted with family caregivers of patients with schizophrenia registered at the psychiatry outpatient unit of a hospital center. Content analysis was performed on audio‐recorded and verbatim‐transcribed interviews. The consolidated criteria for reporting qualitative research (COREQ) checklist was applied to this study. RESULTS: A total of 31 family caregivers participated, the majority of whom were female (71%) with an average age of 57.5 years. Most participants lived with and cared for their relative (90.3%). The caregiver role was assumed mostly by mothers (54.8%) and fathers (22.6%). Barriers to family resilience in caregivers of people experiencing schizophrenia broadly fall under five categories: lack of knowledge about the disease, social stigma, expressed emotion, involvement in the relationship, and blame. CONCLUSIONS: In view of the paucity of studies exploring and understanding the barriers to family resilience, this study presents itself as one of the first in this area. There are different barriers to family resilience. This research provides an overview and an understanding of key barriers to family resilience in caregivers of people experiencing schizophrenia. CLINICAL RELEVANCE: There is a need for nurses to help families to be resilient. By understanding the barriers to resilience, nurses are able to focus on these factors and help families to remove or reduce their influence. John Wiley and Sons Inc. 2021-03-29 2021-07 /pmc/articles/PMC8359939/ /pubmed/33780160 http://dx.doi.org/10.1111/jnu.12651 Text en © 2021 The Authors. Journal of Nursing Scholarship published by Wiley Periodicals LLC on behalf of Sigma Theta Tau International. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Clinical Scholarship
Fernandes, Júlio Belo
Fernandes, Sónia Belo
Almeida, Ana Silva
Cunningham, Rhona Cruzet
Barriers to Family Resilience in Caregivers of People Who Have Schizophrenia
title Barriers to Family Resilience in Caregivers of People Who Have Schizophrenia
title_full Barriers to Family Resilience in Caregivers of People Who Have Schizophrenia
title_fullStr Barriers to Family Resilience in Caregivers of People Who Have Schizophrenia
title_full_unstemmed Barriers to Family Resilience in Caregivers of People Who Have Schizophrenia
title_short Barriers to Family Resilience in Caregivers of People Who Have Schizophrenia
title_sort barriers to family resilience in caregivers of people who have schizophrenia
topic Clinical Scholarship
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8359939/
https://www.ncbi.nlm.nih.gov/pubmed/33780160
http://dx.doi.org/10.1111/jnu.12651
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