Evaluation of a Case Management to Support Families With Children Diagnosed With Spinal Muscular Atrophy—Protocol of a Controlled Mixed-Methods Study

Background: Spinal muscular atrophy (SMA) is a rare neuromuscular disease characterized by degeneration of the anterior horn cells in the spinal cord, resulting in muscle atrophy, and proximal muscle weakness. SMA presents with a wide range of symptoms requiring multiple clinical specialists and the...

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Detalles Bibliográficos
Autores principales: Willems, Jana, Farin-Glattacker, Erik, Langer, Thorsten
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2021
Materias:
Pediatrics
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8369478/
https://www.ncbi.nlm.nih.gov/pubmed/34414138
http://dx.doi.org/10.3389/fped.2021.614512

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8369478/
https://www.ncbi.nlm.nih.gov/pubmed/34414138
http://dx.doi.org/10.3389/fped.2021.614512

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