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E-Health & Innovation to Overcome Barriers in Neuromuscular Diseases. Report from the 1st eNMD Congress: Nice, France, March 22-23, 2019

By definition, neuromuscular diseases are rare and fluctuating in terms of symptoms; patients are often lately diagnosed, do not have enough information to understand their condition and be proactive in their management. Usually, insufficient resources or services are available, leading to patients’...

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Detalles Bibliográficos
Autores principales: Pini, Jonathan, Siciliano, Gabriele, Lahaut, Pauline, Braun, Serge, Segovia-Kueny, Sandrine, Kole, Anna, Hérnando, Ines, Selb, Julij, Schirinzi, Erika, Duong, Tina, Hogrel, Jean-Yves, Olmedo, José Javier Serrano, Vissing, John, Servais, Laurent, Vincent-Genod, Dominique, Vuillerot, Carole, Bannwarth, Sylvie, Eggenspieler, Damien, Vicart, Savine, Diaz-Manera, Jordi, Lochmüller, Hanns, Sacconi, Sabrina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: IOS Press 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8385527/
https://www.ncbi.nlm.nih.gov/pubmed/33843694
http://dx.doi.org/10.3233/JND-210655